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Full disclosure: my father doesn't have Alzheimer's and his cognitive decline is relatively mild. But he has some habits that distress the hell out of my Mom, and I worry about what will happen if he gets worse. While googling some answers on handling irritating behaviors in people with dementia, I ran across this book and bought a copy on a whim.
It's extremely informative, easy to understand (till you get to chapter on genetic factors, and even the book's authors preface it by saying it's a bit of a wade) and well organized. It's also meant for family and caregivers of people with profound dementia, so go into it know it's a look at the worst case scenario.
It's also not a magic spellbook on how to stop irritating or upsetting behavior, mostly because there isn't a magic solution. Different tactics will work for different people, and some people are beyond a point where they can change. This book is about the things you have a shot at controlling: your outlook, your communication, and how to make informed decisions.
The authors try to reassure the reader on several accounts: you're not a bad person if you get angry. The person you love isn't trying to upset you, they literally can't help themselves. And it's not wrong of you to need a break, whether it's for a few hours, or a day, or the rest of their lives (if you can afford it; they don't pull any punches on how expensive nursing facilities are, or how imperfect they can be.)
They also point out to those of us caring for someone with MILD dementia that there's no guarantee that everyone will get to a PROFOUND level of dementia, so prepare for the worst but it's okay to hope for the best.
This is one of those books that nobody wants to read, but I'm glad I did. I didn't find a solution for the exact things that upset my Mom, but I found some coping methods that may help (biggest one being for goodness sake try to stop arguing with the person who has dementia; it won't help either of you, and they probably won't remember what you said anyway.) And while we can't control the future, it's comforting to have as much useful information as possible.
It's extremely informative, easy to understand (till you get to chapter on genetic factors, and even the book's authors preface it by saying it's a bit of a wade) and well organized. It's also meant for family and caregivers of people with profound dementia, so go into it know it's a look at the worst case scenario.
It's also not a magic spellbook on how to stop irritating or upsetting behavior, mostly because there isn't a magic solution. Different tactics will work for different people, and some people are beyond a point where they can change. This book is about the things you have a shot at controlling: your outlook, your communication, and how to make informed decisions.
The authors try to reassure the reader on several accounts: you're not a bad person if you get angry. The person you love isn't trying to upset you, they literally can't help themselves. And it's not wrong of you to need a break, whether it's for a few hours, or a day, or the rest of their lives (if you can afford it; they don't pull any punches on how expensive nursing facilities are, or how imperfect they can be.)
They also point out to those of us caring for someone with MILD dementia that there's no guarantee that everyone will get to a PROFOUND level of dementia, so prepare for the worst but it's okay to hope for the best.
This is one of those books that nobody wants to read, but I'm glad I did. I didn't find a solution for the exact things that upset my Mom, but I found some coping methods that may help (biggest one being for goodness sake try to stop arguing with the person who has dementia; it won't help either of you, and they probably won't remember what you said anyway.) And while we can't control the future, it's comforting to have as much useful information as possible.